Friday
14th September 2001
Megan
had an appointment with the ophthalmologist today - in her
words to describe
this appointment...."significant improvement in Megan's sight - she is
definitely NOT blind". We were incredibly
pleased to hear this.
She went on to tell us she believes Megan
currently can see to the left, and
occasionally to the right. She said that within the next few months
Megan will probably begin to move her head to the right to utilise this
'left-field' vision to her best advantage. All in all - a pretty good
day!
Thursday
13th September 2001
Well,
the 'activity is still there - and her EEG is still considered 'abnormal'.
What does this mean? In basic terms, the medication has removed the
outward spasms we can see, but she still has considerable electrical activity
happening which can possibly hamper her ability to 'function normally'.
We are now in the process of increasing her Sabril over the next 4 weeks, to
near optimum dosage - where she will then have a repeat EEG to see what effect
this increase has. This last EEG showed a slight improvement in
comparison to the EEG she had a month earlier. We are making progress -
just a little slower than preferred. On a positive note, Megan's
development is still pushing forward despite this activity and this is very
promising.
Friday 7th
September 2001
Megan
had her 'follow-up' EEG today. We now visit our neurologist a little
closer to home - at MMC in Clayton rather than having to travel into the RCH.
As you can see from the picture below, they use very trendy looking caps,
although Megan didn't seem to care either way and used it as an opportunity to
snooze!