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Updated 22 August, 2002.
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Thursday 18th October 2001 Megan had an EEG last Monday to determine if the increase in Sabril was effective in reducing the abnormal activity on her EEG. Unfortunately there was no real significant improvement in her current EEG. Questions arose as to what to do next. We had a few options. One option is to do nothing - never an option for us. Another option is for Megan to undergo the steroid route, taking prednisolone, but the side effects of steroids, although only short term, are quite significant. They have the possibility of effecting her sodium levels, but her endocrinologist doesn't believe it will cause us too many problems, even taking into account her diabetes insipidus. I did some research on the internet in the past week regarding treatments for infantile spasms, and came across Vitamin B-6 as a long shot in helping Megan. The side effects of Vitamin B-6 are negligible and so her neurologist recommended we try this path for the next 3 or so weeks, and repeat an EEG in early November. If there is no improvement, we will take the steroid route. We have had a good run with Megan's development, and although she isn't progressing in leaps and bounds, she is moving forwards and this is always positive. All her therapists involved in her care are very pleased with her progress this last month. All of this begins to pale as we hit the countdown of 18 days until Megan's next MRI (due on November 5, 2001), and 'tumour progression' hits the forefront of importance of priorities once again. This scan will be a little more than 6 months since Megan's successful surgical removal of her tumour. Start crossing those body parts and saying those prayers! On a much lighter note, our princess got her first tooth on Monday last week, and her second on Wednesday this week. Two bottom teeth - no more gummy grins! :)
Look hard and you can see my tooth! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
